Rare disease parents have mixed feelings about genetic research results

parents react to their kids' genetic test results

Enrolling in a prospective study or clinical trial doesn’t always mean you’ll walk away with answers.  But trials that sequence a patient’s genome can provide personalized results — and more and more such trials are doing so.

But how do people feel after getting this information?  A new study examined the reactions of parents upon receiving genetic test results for their children with rare diseases.

Read more about this rare disease study on Vector.