Stories about: hemophilia

Readers’ choice: The Notes Top 5 for 2015

tablet stethoscope top 5 reader's choice
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It’s hard to believe that Notes didn’t really exist a year ago. As 2015 comes to a close, it’s a good time to look back and see what you, the readers, decided were the best stories that we published this year. And you picked an interesting range of stories:

  • an op-ed on hemophilia drug pricing
  • a reflection on difficult conversations in health care
  • a report on using simulation to test a hospital’s new emergency department
  • a call for better mentorship in medical training
  • an update on neurosurgical treatment of cerebral palsy

So here they are — the Notes Top 5 for 2015, as chosen by you.

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Dose recommendations for new extended half-life hemophilia factor products fall short


hemophilia extended life factor blood cells
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We, like many in the hemophilia community, were excited to see extended half-life (EHL) factor VIII and IX products start coming to market over the last few months. These products—and expected future products—promise equivalent or greater prophylactic bleeding control with fewer infusions, and so could greatly enhance patients’ quality of life.

Yet, as we noted in our recent editorial in Haemophilia, we are greatly concerned that patients and providers, seeing the opportunity to reduce their infusion burden, will opt for a dosing strategy that may not benefit patients clinically or financially. …Read More

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