I have worked at Boston Children’s Hospital for the last 10 years, the first two as a co-op and the last eight as a staff nurse — all on 6W. I just love this floor. We’re a small, 14-bed unit that provides longer-term care for children undergoing bone marrow transplants. We see different types of leukemia and other cancer and blood disorders such as neuroblastoma, aplastic anemia and myelodysplastic syndrome. We also see other genetic, metabolic and hematologic diagnoses like CVID, Wiskott-Aldrich syndrome, SCID, adrenoleukodystrophy and sickle cell disease, some of which we treat with gene therapy. …Read More
Pediatricians face a difficult task determining when to refer a child for a suspected bone marrow failure syndrome. These syndromes are a group of disorders that typically share a few common features: low blood counts due to poor blood cell production, congenital anomalies and cancer predisposition. However, only a subset of children with bone marrow failure syndromes will present with the findings described in textbooks. These children often appear well and lack classical physical findings. The blood counts may even sometimes be normal or only drop intermittently, but remain at risk for malignancy. By the time a child looks sick, their marrow’s ability to produce blood cells can be so weakened that it could be too late – or at least much more difficult – to treat them successfully. …Read More
It’s Donate Life Month, and at Boston Children’s Hospital’s Division of Pulmonary and Respiratory Diseases, we’re focused on helping our lung transplant recipients survive and thrive year-round.
We give these most critically ill children the best chance by working across disciplines to develop a long-term care plan, using new and innovative therapies when available. We are one of the few pediatric centers to offer photopheresis, a therapy that has been beneficial in treating graft vs. host disease (GVHD) and graft rejection in lung transplantation.
“As many stem cell transplant (SCT) patients later battle chronic lung disease, they are well served by our integrated team approach involving specialists in pulmonology, endocrinology and dermatology as well as experts in oncology from Dana Farber/Boston Children’s Cancer and Blood Disorders Center,” says Craig Gerard, MD, PhD, chief of the Division of Respiratory Diseases and the Leila and Irving Perlmutter Professor of Pediatrics.
Read the case of a patient treated with a bilateral lung transplant for pulmonary complications after SCT for refractory acute lymphoblastic leukemia who is now thriving.