A lot happens in a patient’s life between office and clinic visits that can impact their health and development. This is especially the case for children with a chronic pediatric disorder like ADHD or asthma. The trouble is, how can providers and families capture that data and get a window into those experiences?
Our sister blog Vector spoke recently to Boston Children’s Hospital’s Eugenia Chan, MD, MPH, and Eric Fleegler, MD, MPH, who together have launched TriVox Health, a digital disease management platform for clinicians caring for chronically ill children. The platform started life as a way to capture reports from parents and teachers about children’s ADHD symptoms. Over time, however, it’s grown to incorporate symptom reporting, side effect reporting, quality of life measures and more for multiple conditions.
Speaking about a study their team is conducing of the platform’s impact on patient outcomes, Chan told Vector:
We are still evaluating the data, but I think we’re going to demonstrate that patients and families are better engaged, their doctors know them better, communication improves and families feel greater satisfaction with their visit. Our long-term goal is to show that we truly affect care and health outcomes.
How do you fix a hole in the heart without open heart surgery? That was the challenge facing a group of researchers from Boston Children’s Hospital, Brigham and Women’s Hospital, Harvard School of Engineering and Applied Sciences, and Wyss Institute. In a recent article for Science Translational Medicine, the team reports designing a catheter device that can implant an innovative patch/adhesive combo inside a beating heart.
The patch attaches to the heart wall via a specialized adhesive glue that is activated by UV light. Because the glue works when surrounded by blood, there is no need to drain the heart and place patients on bypass to perform the procedure.
Furthermore, the patch is biodegradable. Over time, heart tissue grows over the patch, and the patch itself dissolves when it is no longer needed. No foreign material is left in the body.
“The way the glue works in the face of blood is revolutionary. We don’t have to stop the heart. This will enable a wide range of cardiac procedures in the future. In addition to avoiding open heart surgery, this method avoids suturing into the heart tissue, because we’re just gluing something to it.”
Health care innovation is all about problem-solving, and having access to the right tools and the right people at the right time. Ahead of Boston Children’s Hacking Pediatrics health care hack-a-thon, vendors from across the U.S. recently gathered at the hospital for a technology showcase to highlight tools spanning the gamut of innovation arenas, such as:
data capture, integration, management, curation and sharing